What I Have Been Up To


Amidst the heavy advocacy we continue to have to do for C we were planning a trip away, just A and I, to Chicago.

Its a city A has always wanted to visit and I want to go anywhere A wants to go.

So for weeks I cleaned and organized the house and tried to co-ordinate care for the boys. We thought back in September that we had a plan for Respite for C all worked out. Then it became glaringly and painfully obvious that those plans were not going to work. On to Plan B and thankfully Grandma came to the rescue! She adores C and while she doesn’t always understand him and his ways her love goes a long way to helping him through the day.

With all the plans in place we headed out


I am NOT a seasoned traveller. Someone REALLY should warn people about the cramped interior of these planes. Seriously I started to have a panic attack – I didn’t even know I was claustrophobic until I sat in my seat.

Luckily the flight was short and A was a blessing with his keen sense of direction once we landed. He navigated us through the airport and public transit with ease. By 2p.m. we were relaxing in our awesome hotel room at Homewood Suites. Very nice, clean, quiet and superb complimentary breakfast. It was central to everything.

Over the next few days we enjoyed amazing views, food and shopping. Navy Pier, Magnificent Mile, Museums, of course the Hershey store.

Most of all, for the first time in who knows how long it was just my man and I. We ate, we walked, we talked and soaked in everything. We weren’t in a rush, we weren’t worried about the boys – REALLY I wasn’t worried about them at all for once. By the end of the trip we were physically exhausted, Chicago is not for lightweights, but our spirits were well rested and rejuvenated.

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